HIGHLIGHTS
- who: A. M. J. van Wegberg from the through the national Phenylketonuria societies of Germany have published the paper: Patient’s thoughts and expectations about centres of expertise for PKU, in the Journal: (JOURNAL)
- what: With this study the authors aimed to evaluate patients and caregiver understanding, expectations and barriers about PKU care from a CE. Ethical consent was not sought as it was clarified at the beginning of the questionnaire that the primary purpose of the survey was to gain opinion about the role and benefit of CE centres to support patients with PKU . . .
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