Experiences of health care and psychosocial needs in parents of children with spinal muscular atrophy

HIGHLIGHTS

  • who: Laura Inhestern and collaborators from the Department of Medical Psychology, University Medical Center Hamburg-Eppendorf, Hamburg, Germany have published the research: Experiences of Health Care and Psychosocial Needs in Parents of Children with Spinal Muscular Atrophy, in the Journal: (JOURNAL)
  • what: The aims of this study are to explore the health care experiences and_(2) to investigate the psychosocial needs of the parents of children with SMA.
  • future: Future studies should include both parents if applicable to allow a comprehensive insight into the parental situation. Since life expectancy and the severity of . . .

     

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