The application of data altruism in clinical research through empirical and legal analysis lenses

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SUMMARY

    As clinical research heavily depends on the use and the reuse of personal data, the application of the European General Data Protection Regulation (GDPR) is of particular importance. As conceived by the DGA, data altruism is understood as the voluntary sharing of data based on the consent of data subjects to allow the processing of personal data pertaining to them, or the permission of data holders - both natural and legal persons2 - to allow the use of non-personal data, without seeking a reward and for objectives of general interest. Such data altruism organizations will . . .

     

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