HIGHLIGHTS
- who: Marco Salvatore from the (UNIVERSITY) have published the research work: The Italian registry for patients with Prader-Willi syndrome, in the Journal: (JOURNAL)
- what: The aims of this paper are to describe the process of setting up the Italian PWS register and to illustrate the preliminary results. Rare disease registries are important tools to collect and share data, to enable multidisciplinary collaboration with the overall aim of improving patients` care and to support healthcare management .
- how: All the information relating to the study are provided to subjects in accordance with the rules . . .
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