Rare diseases: needs and impact for patients and families: a cross-sectional study in the valencian region, spain

HIGHLIGHTS

• who: Cristina Gimenez-Lozano and collaborators from the rare diseases rare diseasesA Cross-Sectional Study in the Valencian Region, Spain University of Valencia, Valencia, Spain have published the Article: Rare Diseases: Needs and Impact for Patients and Families: A Cross-Sectional Study in the Valencian Region, Spain, in the Journal: (JOURNAL)
• what: The aim of this original project was to calculate the diagnostic delay and to evaluate the possible impact on families.
• how: This project was conducted in two phases a first quantitative phase based on the questionnaire used for this study and . . .
  

   

  

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