A community-based participatory framework to co-develop patient education materials (pems) for rare diseases: a model transferable across diseases

HIGHLIGHTS

  • who: Marta Falcu00e3o and colleagues from the Institute of Hygiene and Tropical Medicine (IHMT), NOVA University, Institute of Biomolecular Chemistry, National Research Council of Italy, Pozzuoli, Italy have published the Article: A Community-Based Participatory Framework to Co-Develop Patient Education Materials (PEMs) for Rare Diseases: A Model Transferable across Diseases, in the Journal: (JOURNAL) of 22/Nov/2022
  • what: Questionnaire it was possible to extract information from topics related to A literature review was conducted to understand the state of the art regarding the the journey to get a diagnosis, as well as informational . . .

     

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