A standard set of outcome measures for the comprehensive assessment of osteogenesis imperfecta

HIGHLIGHTS

  • who: Wouter Nijhuis from the University Medical Center Utrecht, Utrecht, The Netherlands have published the Article: A standard set of outcome measures for the comprehensive assessment of osteogenesis imperfecta, in the Journal: (JOURNAL)
  • what: The aim of this initiative was to reach an international, interdisciplinary consensus for a standard set of outcomes and associated measuring instruments for the care of individuals with OI, based on what is important to both experts and patients.
  • how: More than 400 different outcome measures were identified in the literature search.
  • future: Studies are needed evaluate . . .

     

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