Beyond race: recruitment of diverse participants in clinical genomics research for rare disease

HIGHLIGHTS

  • who: . et al. from the University of Pennsylvania, United States have published the Article: Beyond race: Recruitment of diverse participants in clinical genomics research for rare disease, in the Journal: (JOURNAL)
  • what: The authors focused on access to clinical genomics research for diverse patients with rare genetic diseases, including barriers and facilitators to identification of research opportunities, recruitment for and enrollment in studies, and participant retention. The authors focused recruitment on Asian American and Hispanic families, the two largest racial/ethnic minority groups at the study site.
  • how: The authors examined the experiences . . .

     

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