HIGHLIGHTS
- who: Rosanne M. Smits from the designed among parents from children with a rare disease or complex condition in an Integrated University Children`s have published the article: Common needs in uncommon conditions: a qualitative study to explore the need for care in pediatric patients with rare diseases, in the Journal: (JOURNAL)
- what: This study examines common needs from a comprehensive perspective combining relevant aspects from the rare disease literature in a theoretical perspective from pediatric psychology such as a family-centred developmental and interdisciplinary approach. The results from the study provide directions for research . . .
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