Description/method: our objective was to identify the strengths and weaknesses of the current paediatric rheumatology shared-care serv- ice at our dgh and to provide an action plan for improving the service. children and young people looked after by our dgh for a rheumatologi- cal condition, on immunosuppressants, whose care was shared with the tertiary centre were selected. data collection was done via one-to- one telephone interviews with families based on a semi-structured questionnaire including the following four themes: 1. views of shared care rheumatology. 2. blood tests and the blood monitoring experience. 3. medication related issues: obtaining, collecting and giving medication. 4. views on transition to adult care. the questionnaire was produced jointly by a paediatric doctor, the lead paediatric pharmacist and the lead nurse for the paediatric day unit, who is involved in blood tests, blood monitoring and delivering immu- nosuppressant medication. the questionnaire was piloted and modi- fied. interviews were conducted by a doctor not involved in the routine shared-care service to encourage honest answers, and to reduce observer and investigator bias. after data collection, quantitative and qualitative analysis (thematic analysis) were performed. strengths and weaknesses of the service were identified. discussion/results: 20 patients met our selection criteria and all 20 responded. questionnaires were completed between april and july 2020. on average, in the last year, patients visited their local dgh 2.5 times and their tertiary centre 2.9 times. 75% of these visits were outpatient appointments. shared care the following issues were identified by families through thematic analysis: 1. proximity to home for appointments was important. the local team is responsive to their care. 2. many appointments over both centres and missing school for appointments was a concern. 3. local and tertiary centres don’t always share information. 4. most families were happy to visit both hospitals. blood tests blood testing was split between the gp, the local dgh, the tertiary hos- pital and community nurses. blood tests were usually performed every 2-3 months. families spoke positively about the blood testing experi- ence. the suggested improvements were: 1. proximity to home for blood tests to avoid missing school. 2. better communication of results between hospitals. 3. a record of blood test results to keep at home. medication-related issues 70% of our cohort were taking methotrexate, and 20% were taking bio- logic medications. prescriptions were provided by the gp, the local dgh and the tertiary centre. issues identified by families were: 1. barriers to collecting medications (e.g. unhappy to leave the house due to covid-19; unsure where to collect medication from; problems with obtaining prescriptions from the gp). 2. better communication needed between hospitals about when new medication will start. 3. patients would like to reduce the pain of the injection. 4. methotrexate has too many side effects. transitioning to adult care

HIGHLIGHTS

  • who: POSTERS and collaborators from the Medical Sciences, Newcastle University, Newcastle, United have published the article: Description/Method: Our objective was to identify the strengths and weaknesses of the current Paediatric Rheumatology shared-care serv- ice at our DGH and to provide an action plan for improving the service. Children and young people looked after by our DGH for a rheumatologi- cal condition, on immunosuppressants, whose care was shared with the tertiary centre were selected. Data collection was done via one-to- one telephone interviews with families based on a semi-structured questionnaire including the following four . . .

     

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