Development and implementation of the aida international registry for patients with vexas syndrome

HIGHLIGHTS

  • who: Luca Cantarini from the University of Turin, Italy have published the research: Development and Implementation of the AIDA International Registry for Patients With VEXAS Syndrome, in the Journal: (JOURNAL)
  • what: The AIDA Registry presented in this work has been created as an international, clinical, physician-driven, population- and electronic-based registry dedicated to patients diagnosed with VEXAS syndrome. The patient has to give the written and informed consent after a careful explanation of the Project: the objectives of the Registry, the lack of implications on clinical management and treatment, the opportunity to withdraw the . . .

     

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