HIGHLIGHTS
SUMMARY
Current literature does not provide a good understanding of the impact on mental health specifically in the UK, and in particular the impact of the support offered by the UK health services, for those affected by or caring for someone with any rare disease. The authors wanted to address this gap in knowledge for the UK rare disease population and investigate: the extent and nature of the impact on mental health; contributing factors; experiences of support and services in relation to mental health; and steps towards better mental health support. The elements in the . . .
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