Opportunities and obstacles in linking large health care registries: the primary secondary cancer care registry – breast cancer

HIGHLIGHTS

• who: Marianne J. Heins from the The Netherlands Institute for Health Services Research (Nivel) collects longitudinal data that are routinely recorded by general practitioners (GPs), and processes these data into Nivel-Primary Care Database (NivelPCD) [11]Nivel-PCD contains data on the number and type of contacts with the primary care physician, health conditions that are presented during these contacts, prescriptions, results of laboratory tests, measurements and referrals to secondary care. Currently, data are collected from a dynamic cohort of approximately , practices (representing about, % of all Dutch practices) spread throughout the Netherlands. All Dutch inhabitants are registered . . .
  

   

  

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