Ownership of individual-level health data, data sharing, and data governance

HIGHLIGHTS

SUMMARY

    On the one hand, there are those who want to privatize data (Privatization Postulate, PP): for them, private ownership is construed as a means of individual control over one`s data, privacy, and property. When the adherents of the CP argue that a government or its agencies own certain elements of individual health data, this means that a private company or research consortium is obliged to either deliver copies of certain records to a public repository or give access to this data on its own servers. The term "data governance system" refers to a . . .

     

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