Palliative care in sma type 1: a prospective multicenter french study based on parents’ reports

HIGHLIGHTS

• who: Marie Hully from the Universitätsklinikum Köln, Germany Neurology Department and Neuromuscular Diseases Reference Center AOC, CHU Montpellier, PhyMedExp, University of have published the paper: Palliative Care in SMA Type 1: A Prospective Multicenter French Study Based on Parents' Reports, in the Journal: Nutritional Management Most parents (27/29, 93%) reported difficulties in feeding their child at a median of 4.7 (0.8-12.2) months of age. Parents reported prolonged meal duration at a median of 6.4 months (0.8-12.2) (17/27, 63%), eating-induced fatigue at a median 5 . . .
  

   

  

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