HIGHLIGHTS
- who: Heike Ku00f6lbel et al. from the Centre for Neuromuscular Disorders, Center for Translational Neuro and Behavioral Sciences, Department of Pediatric Neurology, University Duisburg-Essen, Essen, Germany have published the research work: Parental Burden and Quality of Life in 5q-SMA Diagnosed by Newborn Screening, in the Journal: Children 2022, 9, 1829. of 15/01/2018
- what: The aim of this study was to assess the psychosocial burden in parents of with spinal muscular atrophy (SMA) detected by_(NBS) for which first pilot projects started in January 2018 in Germany. Although there are different studies . . .
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