HIGHLIGHTS
- who: Lindsay E. Rosenfeld from the (UNIVERSITY) have published the article: Participation in a national diagnostic research study: assessing the patient experience, in the Journal: (JOURNAL) of March/31,/2021
- what: The aim of this study is to gain a deeper understanding of the patient and caregiver perspective on participating in the UDN, whether this resulted in a diagnosis or not. In the following, the authors report the findings from a qualitative study with UDN participants and caregivers who completed the UDN evaluation. The survey was available through REDCap and collected information about eligibility criteria . . .
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