Patient and family experience with transthyretin amyloid cardiomyopathy (attr-cm) and polyneuropathy (attr-pn) amyloidosis: results of two focus groups

HIGHLIGHTS

  • who: David Rintell from the BridgeBio, Palo Alto, CA, USA have published the article: Patient and family experience with transthyretin amyloid cardiomyopathy (ATTR-CM) and polyneuropathy (ATTR-PN) amyloidosis: results of two focus groups, in the Journal: (JOURNAL)
  • what: Investigations into the QOL of people living with ATTR typically employ approaches utilizing validated quantitative instruments (e_g, Kansas City Cardiomyopathy Questionnaire ; Norfolk Quality of Life Questionnaire-Diabetic Neuropathy ; EuroQOL 5-Dimention 3-Level Instrument ), as utilized by several recent interventional clinical trials examining disease-modifying agents as well as observational studies and investigations aimed at uncovering . . .

     

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