Patient and public involvement (ppi) in outcome selection in breast cancer and nephrology trials

HIGHLIGHTS

SUMMARY

    The authors found that according to the patients and healthcare professionals, teams conducting breast cancer and nephrology trials got their choice of primary outcome wrong (72% of the time) more often than they got it right (28% of the time). A Patient and Public Involvement (PPI) representative, co-author of this letter (LL), asked (on Twitter) whether PPI contributors had been involved in the design of the original trials and by extension the outcome selection. The authors wanted to see if the outcome selection in trials involving PPI contributors was more agreeable to patients . . .

     

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