Patient life aspirations in the context of duchenne muscular dystrophy: a mixed-methods case-control study

HIGHLIGHTS

• who: Carolyn E. Schwartz from the In summary, this is the first study to assess the differences in the reporting of goals and aspirations between individuals with and without DMDThe large sample size of participants facilitated the ability to examine how aspirations change as individuals age, which is of particular importance for progressive diseases such as DMD. When attempting to ascertain the humanistic impact of disease, this study highlights the value of incorporating its impact on aspirations using both qualitative and quantitative data, particularly for diseases with early onset. The methodology applied in this study can be . . .
  

   

  

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