Position statement open access

HIGHLIGHTS

• who: Nathan Denton et al. from the Medicine, University of Pennsylvania, Philadelphia, PA, USA have published the article: POSITION STATEMENT Open Access, in the Journal: (JOURNAL)
• what: The authors propose several initiatives for key stakeholders - including regulators private and public foundations and research institutions - to reorient the rare disease ecosystem and its incentives in a way that the authors believe would cultivate and accelerate innovation. Specifically the authors propose supporting non-proprietary patient registries greater data standardization global regulatory harmonization and new business models that encourage data sharing and research collaboration as the default mode . . .
  

   

  

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