Positive association between physical outcomes and patient-reported outcomes in late-onset pompe disease: a cross sectional study

HIGHLIGHTS

  • who: Meng Yuan from the Erasmus MC University Medical Center, Rotterdam, The Netherlands have published the Article: Positive association between physical outcomes and patient-reported outcomes in late-onset Pompe disease: a cross sectional study, in the Journal: (JOURNAL)
  • what: The aim of this study is to investigate the associations of outcomes with patient-reported outcome measures (PROMs) in late-onset Pompe disease. This annual survey was sent out by mail from May 2002 onwards, and since May 2009 also collected through a secure web survey system . In the present analysis, no score was calculated . . .

     

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