Public views about involvement in decision-making on health data sharing, access, use and reuse: the importance of trust in science and other institutions

HIGHLIGHTS

• who: Clau0301udia de Freitas from the Ciu00eancias Pu00fablica Forenses Educau00e7u00e3o Mu00e9dica, Universidade do (FMUP), Sevilla University, Spain have published the research: Public Views About Involvement in Decision-Making on Health Data Sharing, Access, Use and Reuse: The Importance of Trust in Science and Other Institutions, in the Journal: (JOURNAL)
• what: The authors assess the views of rare disease patients and their informal carers about being involved in decisions regarding data sharing, access, use and reuse with a focus on the role played by trust in science and other institutions. The study shows that participants with . . .
  

   

  

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