HIGHLIGHTS
- who: Jasmin Barman-Aksu00f6zen and colleagues from the International Porphyria Patient Network (IPPN), Zurich, Switzerland have published the article: Quality-Adjusted Life Years in Erythropoietic Protoporphyria and Other Rare Diseases: A Patient-Initiated EQ-5D Feasibility Study, in the Journal: (JOURNAL)
- what: To not compromise the identity of the participants of this study, only mean and SD values are provided in the results in Section 3. The study was conducted between July and August 2020 and the data for the study were collected once during this period. One of the patients initially invited did not . . .
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