Real-world data on access to standards of care for people with spinal muscular atrophy in the uk

HIGHLIGHTS

• who: Robert Muni-Lofra from the spinal muscular atrophy, standards of care, neuromuscular diseases, real-world data, United KingdomUniversity of Messina, Italy have published the research work: Real-World Data on Access to Standards of Care for People With Spinal Muscular Atrophy in the UK, in the Journal: Nutritional management, swallowing and gastrointestinal dysfunction Non-sitters
• what: The aim of this study is to describe the experience of individuals living with SMA regarding their specialist care in the UK in relation to the SoC as described in published documents.

SUMMARY

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