HIGHLIGHTS
- who: Jo Martinussen and collaborators from the Department of Paediatrics, The University of Melbourne, Melbourne, Australia have published the Article: Receiving Genomic Sequencing Results through the Victorian Undiagnosed Disease Program: Exploring Parental Experiences, in the Journal: (JOURNAL) of 29/07/2022
- what: Whereas the diagnostic outcomes of undiagnosed disease programs have been well-described here the authors explore how parents experience participation in the UDP-Vic and the impact of both diagnostic and non-diagnostic genomic sequencing results for their children. The interview schedule was developed based upon the research aims and addressed three domains . . .
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