HIGHLIGHTS
- who: Mercedes Guilabert from the study involves a first assesment of the experience of patients with rare diseases in Spain have published the article: Results of a Patient Reported Experience Measure (PREM) to measure the rare disease patients and caregivers experience: a Spanish cross-sectional study, in the Journal: (JOURNAL)
- what: The aim of this study was to measure the experience of the person having a rare disease to identify objectives for optimal care in the health care received by these patients.
- how: A cross-sectional study was conducted in Spain involving patients . . .
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