The experiences of patients with adjuvant and metastatic melanoma using disease-specific social media communities in the advent of novel therapies (excite project): social media listening study

HIGHLIGHTS

• who: Unknown from the Ethical Conduct At the time of conducting the study, no strict guidelines on the appropriate use of health-related social media data had been developedHowever, this study followed the recently published ethics framework from the University of Sheffield [22]. Only public open-access forums were used, where contents were openly visible and there was no requirement to register or to create a profile to view content. Terms and conditions of included forums were carefully reviewed to ensure compliance. To protect user privacy, no quotations are provided verbatim, and the original post cannot be . . .
  

   

  

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