HIGHLIGHTS
- who: Lemuel J. Pelentsov from the School of Nursing and Midwifery, Division of Health Sciences, University of Australia have published the paper: The supportive care needs of parents with a child with a rare disease: results of an online survey, in the Journal: (JOURNAL)
- what: The aim of this research was to determine the supportive care needs of parents caring for a child with a rare disease. Source of individual questions While the survey was constructed based on the previously reported scoping review and focus group research, some of the individual items were founded on . . .
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